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Validation of the Brazilian Portuguese version of caregiver priorities and child health index of life with disabilities
Luiz Antonio Pellegrino1, Erika Veruska Paiva Ortolan2, Pedro Luiz Toledo de Arruda Lourenção3, José Eduardo Corrente4, Ariane Aparecida Viana5, Cleber Ricardo Cavalheiro5, Felipe Gomes6, Unni G. Narayanan7
1MSc, MD, Bauru State Hospital, Bauru, SP, Brazil
2PhD, MD, Head of the Department of Surgery and Orthopedics, Botucatu Medical School, Botucatu, SP, Brazil
3PhD, MD, Professor, Surgery and Orthopedics Department, Botucatu Medical School, Botucatu, SP, Brazil
4PhD, Professor, Bioscience Institute, Botucatu, SP, Brazil
5MSc, Physical therapist, Bauru State Hospital, Bauru, SP, Brazil
6Undergraduate student, Botucatu Medical School, Botucatu, SP, Brazil
7PhD, MD, Professor, Divisions of Orthopaedic Surgery & Child Health Evaluative Sciences, The Hospital for Sick Children, Bloorview Research Institute, University of Toronto, Ontario, Canada

Article ID: 100031D05LP2017
doi:10.5348/D05-2017-31-OA-7

Address correspondence to:
Luiz Antonio Pellegrino
Rua Sergipe,
673, Apt. 82, São Paulo
Brazil

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How to cite this article
Pellegrino LA, Ortolan EVP, de Arruda Lourenção PLT, Corrente JE, Viana AA, Cavalheiro AA, Cavalheiro CR, Gomes F, Narayanan UG. Validation of the Brazilian Portuguese version of caregiver priorities and child health index of life with disabilities. Edorium J Disabil Rehabil 2017;3:56–61.


ABSTRACT

Aims: To assess the reliability and validity of the caregiver priorities and child health index of life with disabilities (CPCHILD) – Brazilian Portuguese Version (BPV), a measure of health status and well-being of children with cerebral palsy.
Methods: After the translation and cross-cultural adaptation of the CPCHILD questionnaire to Brazilian Portuguese previously published, the questionnaire was applied to 104 caregivers of patients with cerebral palsy and was reapplied a second time 2–3 weeks after to measure test-retest reliability (n = 26). The children were classified according to the GMFCS (Gross Motor Function Classification System) from I to V, and demographic data were recorded. Results: The mean age of patients was 12.44±4.04 years. Mean total score on the CPCHILD was 66.68±16.55. The mean of the absolute differences in total scores between first and second questionnaire administration was 0.35±9.03 points (range -1.57 to 2.26). The ICC for the total questionnaire score was 0.959 and ranged from 0.922 to 0.983. Cronbach’s a coefficient (internal consistence) was 0.933 and was above 0.80 in all domains of the CPCHILD (range 0.849–0.951), except for the 5th domain (0.472). According to Pearson’s correlation coefficient, there was a negative correlation between GMFCS levels and the CPCHILD scores (r= -0.62, p<0.0001).
Conclusion: CPCHILD BPV proved to be a reliable and valid instrument to measure the health status and well-being of cerebral palsy children.

Keywords: Assessment, Developmental disabilities, Health-related quality of life, Questionnaire, Validation



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Acknowledgements
We wish to thank the parents who participated in the study and the staff in the rehabilitation sector of the Bauru State Hospital.

Author Contributions
Luiz Antonio Pellegrino – Substantial contributions to conception and design, Analysis and interpretation of data, Drafting the article, Revising it critically for important intellectual content, Final approval of the version to be published
Erika Veruska Paiva Ortolan – Substantial contributions to conception and design, Analysis and interpretation of data, Drafting the article, Revising it critically for important intellectual content, Final approval of the version to be published
Pedro Luiz Toledo de Arruda Lourenção – Substantial contributions to conception and design, Analysis and interpretation of data, Drafting the article, Revising it critically for important intellectual content, Final approval of the version to be published
José Eduardo Corrente – Substantial contributions to conception and design, Analysis and interpretation of data, Drafting the article, Revising it critically for important intellectual content, Final approval of the version to be published
Ariane Aparecida Viana – Substantial contributions to conception and design, Acquisition of data, Analysis and interpretation of data, Revising it critically for important intellectual content, Final approval of the version to be published
Cleber Ricardo Cavalheiro – Substantial contributions to conception and design, Analysis and interpretation of data, Drafting the article, Revising it critically for important intellectual content, Final approval of the version to be published
Felipe Gomes – Substantial contributions to conception and design, Acquisition of data, Analysis and interpretation of data, Drafting the article, Revising it critically for important intellectual content, Final approval of the version to be published
Unni G. Narayanan – Substantial contributions to conception and design, Revising it critically for important intellectual content, Final approval of the version to be published
Guarantor of submission
The corresponding author is the guarantor of submission.
Source of support
None
Conflict of interest
Authors declare no conflict of interest
Copyright
© 2017 Luiz Antonio Pellegrino et al. This article is distributed under the terms of Creative Commons Attribution License which permits unrestricted use, distribution and reproduction in any medium provided the original author(s) and original publisher are properly credited. Please see the copyright policy on the journal website for more information.